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International Angelman Day: Angelman Syndrome and New Hope for Treatment


Angelman Syndrome is a rare neuro-genetic condition, specifically in children that can cause developmental delays and challenges and/or affect nerve functioning. Because of the rare nature of the condition, until recently there haven’t been many treatment options available. However, with advancements in the fields of medicine and psychiatry, more research is being done in attempt to provide hope to children and their families affected by the condition and according to The Angelman Syndrome Foundation, there is hope for a cure (https://www.angelman.org/what-is-as/). 

In observance of International Angelman Day on February 15th, check out Ovid Therapeutics’s video of real families sharing their stories of living with Angelman Syndrome here: https://www.youtube.com/watch?v=WKxfJKjq6Ek along with their other videos on their Youtube Channel about Angelman Syndrome as well as The Angelman Syndrome Foundation website found above. 

At Suburban Research Associates, we know managing life with a child diagnosed with Angelman Syndrome can be a difficult journey. We are proud to have the opportunity to participate in this new and advancing research. It’s our goal to provide children and their families struggling with Angelman Syndrome the opportunity to participate in an Angelman Research Study for children between ages 2 through 12. We are dedicated to providing the best quality research care possible. 

If your child or a child you know is struggling with Angelman Syndrome, visit our Angelman Syndrome study page here to find out more and apply for our Angelman Syndrome study.  (http://suburbanresearch.com/browse-studies/#!/study/107). For specific questions and inquiries, feel free to fill out the form below, or call us at 610-891-7200 and we’ll be happy to provide more information.

To stay up to date on the latest news about Angelman Syndrome and our studies, follow us on our social media links below.

 

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